Visiting Day

Isabella would be at camp for nearly four weeks when visiting day finally arrived. I had prepared for this day practically from the day that she had left for camp. I marked it in my calendar (paper for me). I started a pile of items to bring to her at camp. I pleaded with Victoria’s conservatory to allow her to … Read More

Sisters

Recently, we dropped off Victoria — Isabella’s big sister — at the Broadway Conservatory for a 2-week program. That means that she will not be able to accompany us to the one and only visiting day at Isabella’s 7-week camp. We haven’t mentioned this to Isabella. She will be expecting Victoria. Whenever Victoria was away for a school trip — … Read More

Graduation — a milestone

Isabella’s first request for her graduation from the Banyan School was Aunt Joan and Uncle Donald’s attendance. Since her grandparents are no longer with us, Isabella (and the rest of the family) has looked to my father’s brother and his wife as our wise elders. It’s a reminder of the importance of the generational connection. I was lucky enough to … Read More

The other siblings

Of course, a book with the title Twin appeals to me as a mother of twins. This book is especially pertinent to me. It’s authored by the twin of a disabled (I do not like that term) twin. Um. What does he have to say? The author is Alan Shawn who happens to be the son of the former editor … Read More

It takes a village

The motto “It takes a village” was popularized by Hillary Clinton, though she certainly did not coin the phrase, nor did it apply to her life raising Chelsea in the White House.  For parents with children with developmental disabilities, it certainly does take a village or at least some awesome relatives and fantastic friends. This does not always mean that … Read More

The future: the unknown

Each morning Isabella gets picked up by a van to deliver her to her school. The time that transportation arrives varies daily. We try to be ready at the same time each day. Sometimes, but not often, Isabella waits on our stoop. We usually leave the front door open and she yells in to us or runs back in to … Read More

Going to the country

My kids used to love going away with the family. The novelty wears off when you reach the age of teenhood. That makes me sad. I’m still in mothermode and my kids are moving into young adult mode or they seem to think so. You know, the perks of adulthood without the responsibilities. Isn’t that what we all long for? I … Read More